Big data to aid in fighred silicone wristbandsting rare diseases

Wedding Favors: Dare To Be Various Anyone who was in Denver knows the chaos and sheer terror that radiated from Littleton that day. I was on my way to meet a co-employee for lunch. She worked just blocks from Columbine. Police vehicles sped previous, lights on and sirens blaring, at no less than 60 miles an hour. Straight down Wadsworth, a primary street connecting most of the metro location cities in Denver, the police cars came. And then some much more. And then even much more. I could practically hear the calamity from exactly where I was. You can also make really a statement with rings. In certain massive cocktail rings are actually "in" at the second, as nicely as bangles. Bangles are designed of various resources, like as gold, silver, glass, wood, plastic and women are very likely to dress in them in pairs, at times a single but normally further on every single arm. Or if you favor bracelets you can choose out from distinct friendship, stretch or allure bracelets. And very properly-liked between youngsters are coloured custom silicone wristbands. Another fantastic summertime fruit is cherries. With their rich red color they would make a terrific hunting wedding favor. Handfuls of cherries can be presented in any quantity of containers. Mini galvanized tin pails would be adorable for a farm or meadow reception. Or area the cherries in tiny white ceramic bowls with a cherry pie recipe attached. Clear Chinese take-out style containers could even work. Add a rather bow all around the handle, and you will be all set with a rapid and straightforward favor that everybody is confident to appreciate.
The fact that you can even now obtain these says anything about their fashion staying power. While a handful of black only silicone wristbands used to do the trick, a quite current twist is to wear two contrasting colors, such as black and white. Also, pare down the quantity you dress in. In the "80s it was as numerous as you could, now it is morefashionable to put on half a dozen or so. Diamonds have constantly been a girl"s ideal pal and it knows no age limit. Teens enjoy diamonds and stones as much as they love rope chokers and thumb rings. Go into any teens area and you are positive to uncover a drawer or dresser prime filled with jewellery of all types. Obtaining a spot to store their jewelry is an excellent way to maintain jewels from acquiring tangled and destroyed. Rubber stamps have turn into really common over the many years. People have identified far more approaches in which these stamps can be utilised. This has led to enhance in its demand. There are a lot of producers who give rubber bracelets stamps produced of various sorts of resources. Additionally, innovative people are employed to feel of diverse styles of stamp that can be manufactured. Collecting different patterns of personalized has turn into a pastime for a lot of people. The perennially popular automobile wash fund raiser is a summer season staple and for excellent reason. Church youth groups can always count on it to raise hundreds of dollars for mission trips and other youth ministry demands. Any time you pick a Swiss Legend Observe to wear, you can rest assured that you"ve picked a good quality timepiece that is also powerful on design. No matter whether for male or female, these watches were designed with your busy lifestyles in thoughts.
[Photo/IC]

Health authorities target birth defects, say domestic drugs would cost less

Health authorities will step up efforts to reduce the incidence of rare diseases and improve diagnosis and treatment, a senior health official said ahead of Rare Disease Day, which falls on the last day of February.

"We will try to further reduce inherited birth defects that lead to rare diseases," Jiao Yahui, deputy chief of medical administration and supervision at the National Health Commission, said at a news conference on Wednesday.

"Meanwhile, we will intensify the diagnosis and treatment of rare diseases by enhancing the role played by internet technology."

The commission has established a national computerized system to register diagnosis and treatment information on rare diseases, and big data technology is being used to promote research on the diagnosis and treatment of rare diseases in China, she said.

There is no official figure on the number of people with rare diseases in the country. Although incidence is low by definition, the absolute number of such people in China is large, considering the size of the total population, Jiao said.

Worldwide, there are different definitions for rare diseases. In the United States, diseases with an incidence of less than two in 10,000 are regarded as rare, Jiao said.

Zhang Shuyang, vice-president of the China Alliance of Rare Diseases and vice-president of Peking Union Medical College Hospital, estimates the total number of such people in China exceeds 20 million.

There are nearly 7,000 identified rare diseases worldwide, she said, but while the rate of having one is low, there may still be many patients.

Jiao said the diagnosis and treatment of rare diseases is a thorny issue worldwide, and effective means of diagnosis and drugs are lacking for many of them, partly due to the smaller patient pool, which discourages pharmaceutical companies from researching and developing drugs to treat them.

Last year, China released for the first time a list of 121 rare diseases, including albinism and young-onset Parkinson"s disease. The list will be expanded as diagnoses improve, she said.

To improve diagnosis and treatment of such patients, the commission has established a hospital network comprising more than 300 top-tier recommended hospitals across the country, Jiao said.

"Many rare diseases are also inherited," she said. "We will continue to improve pre-pregnancy and pre-birth checkups, as well as disease screening for pregnant women, to reduce the occurrence of rare diseases in newborns."

Zhang said intensifying research and development is crucial for diagnosis and treatment of such diseases.

"Worldwide, effective drugs are available for only 5 percent of all the rare diseases," she said. "In China, most of the related drugs are imported and are very expensive."

The recent decision by the central government to reduce value-added taxes for 21 drugs targeting rare diseases could make them more affordable, but only domestic production will effectively reduce the prices, she said, adding that more efforts should be made to encourage domestic pharmaceutical companies to develop them.